A Morning of Screening in Ilemela
Families queued from sunrise for free genotype testing. By noon, our volunteers had counselled every parent who walked through the door.
Read the storyTanzania Sicklecell Warriors Organisation (TASIWA)
We educate communities, fight stigma and stand with families living with sickle cell disease — from Mwanza to every corner of Tanzania.
Education is for improving the lives of others and for leaving your community and the world better than you found it.
— Marian Wright Edelman, a guiding idea behind our workWho we are
TASIWA is a non-governmental organisation based in Mwanza, Tanzania; founded in 2016 by three mothers, two by being mothers to SCD babies and one being a SCD warrior herself. It was successfully registered in August 2019 (under the Tanzania NGO Act No. 24 of 2002, R.E 2005) to operate in Tanzania Mainland and having its headquarters offices in Mwanza, Tanzania. TASIWA works toward empowering the quality of lives of people living with sickle cell disease by promoting education and awareness on sickle cell disease (SCD), bring new hope to affected families, and assuring access to proper medical and affordable comprehensive health care.
We provide guidance and counselling, psychosocial support and education — and we work to reduce the stigma that still surrounds the disease. Our partners include local government, medical centres, universities, civil society and the private sector.
What we do
Community dialogues, genotype testing drives and Sickle Cell Clubs in schools and universities.
Learn more 02Helping families access medical services and start small businesses so treatment is sustained.
Learn more 03Breaking down stigma and partnering with medical centres on blood donation for warriors.
Learn moreOur projects
Improving access to healthcare, strengthening the economic capacity of parents and caregivers, and enhancing the quality of life of children living with sickle cell disease in Ilemela and Nyamagana districts, Mwanza.
A 2021 project funded by the Bank of Tanzania (BoT) that used exercise books (Daftari) as a tool to carry sickle cell messages and amplify the voice of sickle cell in the community, especially in schools.
A Kenya–Tanzania initiative strengthening early detection, access to care, community awareness and support for people affected by sickle cell disease. TASIWA implements interventions in three districts of Geita Region.
SHIL Key achievements
Funded by the Bristol Myers Squibb Foundation · Implemented by TASIWA · Supervised by Baylor Tanzania
Where we work & how we measure
Our projects reach families in Ilemela and Nyamagana (Mwanza) and three districts of Geita, as part of a Kenya–Tanzania initiative.
Every result we report passes through our data management system, which helps us process information from the field and deliver accurate, timely reports to partners.
Interactive
Sickle cell disease is inherited. Pick each parent's genotype to see the chance for every pregnancy.
AA — normal AS — carrier (trait) SS — sickle cell disease
This tool is for education only. Talk to a health worker about genetic counselling. Learn more about SCD →
From the field
Families queued from sunrise for free genotype testing. By noon, our volunteers had counselled every parent who walked through the door.
Read the storyMyth vs fact
Tap a card to reveal the truth.
Call for partnerships
We have reached a significant part of the Mwanza region. To reach every region, we work hand in hand with government, institutions, civil society and individuals — and we're inviting more partners to join.
Partner with usGive once or monthly through mobile money or bank transfer.